Join KIF1A.ORG this Rare Disease Day to make your voice heard and advance our mission to cure KIF1A Associated Neurological Disorder.
Rare Disease Day takes place on the last day of February each year to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. This is the reality for families affected by KIF1A Associated Neurological Disorder. We’re here to change that.
Want to help?
Thank you to every single KIF1A patient, caregiver, friend, researcher, clinician and supporter for being part of the KIF1A.ORG community. Contact us if you’d like to learn more about how you can support our mission this Rare Disease Day.