Feb 18
Wednesday, February 18, 2026 2:00 pm - 3:30 pm Eastern Time Zone
Online via Zoom

Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value hearing directly from our community and families during these calls.

Come join our Executive Director, Dominique Lessard, and our Chief Science Officer, Dylan Verden to discuss:

  • Updates from KIF1A.ORG
  • KIF1A Sibling Support: We are revealing a new community resource in development focused on providing KIF1A siblings with targeted support. We will be giving a brief presentation, followed by time for community input and discussion.
    KIF1A and Puberty: We will lead an informal group discussion on the challenges and experiences of navigating the intersection of KIF1A and puberty. We encourage you to bring you questions and speak freely amongst friends in a safe and supportive space.