Jeremiah was diagnosed with KIF1A Associated Neurological Disorder (KAND) in 2022 after multiple surgeries and several medical providers recommended genetic testing.
To those who know and love him, Jeremiah is best known for his sense of humor, his prankster personality, and his love of good music and good food. He has a way of keeping people on their toes and making those around him laugh.
Jeremiah is active in his community. He enjoys visiting natural parks, volunteering at community gardens, yoga, and simply people-watching around the Washington, D.C. metro area where we live.
Jeremiah also spends time working alongside his mom as an advocate for disabled young adults in the D.C. and Maryland area, helping bring awareness to the challenges many families face while navigating services and supports.
Above all, Jeremiah is an incredibly resilient person. No matter what kind of day he is having, he almost always manages to find a moment to smile.
One of the most important things Jeremiah has taught others is not to give up. It took years of searching, multiple surgeries, and many conversations with doctors before we finally got answers. Even now, the journey of understanding and supporting Jeremiah continues.
Jeremiah has also taught us patience. Living with a rare condition means that progress does not always come quickly, and sometimes the path forward is uncertain. In many ways, this journey is a marathon, not a sprint. We have learned that pacing ourselves, staying persistent, and celebrating small victories along the way can make all the difference.
