🩵 April 28, 2025: KIF1A Day
Every April 28th, we come together as one global community to honor the strength, resilience, and spirit of our KIF1A families on KIF1A Day!
It’s a day to celebrate our extraordinary patients, who face each day with courage and determination, and to shine a spotlight on KIF1A-Associated Neurological Disorder (KAND)—a rare disease that demands our urgent attention.
KIF1A Day is not only a moment of reflection and recognition, but a powerful call to action: to raise awareness, accelerate research, and fuel the fight for treatments and a cure.
Together, we are turning hope into progress—one story, one step, and one SUPERHERO at a time. 💫 Meet our incredible KAND superheroes and learn more about their journeys here. ⬇️
🦸♂️ This KIF1A Day, we’re asking for your support to help KAND families overcome financial barriers and attend the 2025 KAND Conference—a vital opportunity for connection, learning, and participation in groundbreaking research.
💙 100% of donations made between April 21-April 30 in honor of KIF1A Day will go directly to travel assistance for families attending the 2025 KAND Conference.
Your donation will help cover:
- Airfare
- Lodging
- Travel expenses
Let’s make it possible for every family to be part of this powerful experience!
#KIF1ADay #HelpThemFly #KANDconference2025 #KIF1A #RareDisease #KANDcommunity
