Sadie's Story

Sadie is a KIF1A superhero.

  • Hometown: Negaunee, MI
  • Age: Nearly 4
  • All-Star Wrestler
  • Total Superhero

A Note From Sadie’s Family

Sadie is a busy girl, despite being cortically blind and having low muscle tone (hypotonia). Her therapists describe Sadie as the most determined kid they have ever seen. She was diagnosed with KIF1A Associated Neurological Disorder shortly before her 2nd birthday.

Sadie’s recent accomplishments include saying her ABCs and playing “Name that Tune” with her favorite nursery rhymes! She is very motivated by food. Some of her favorite things to eat are berries, peanut butter, and chocolate milk.

Her favorite activity is wrestling and climbing. She specializes in a reverse-chokehold fake-out that starts as a hug. She loves music and her Fisher Price piano; when she wears her sunglasses her nickname is Sadie Wonder.

Sadie loves vigorous play, aggressive swinging, being upside-down, tickling, and eating raspberries!

 

Comments

  1. 1
    Jan Frearson on May 5, 2019

    Not only is Sadie a Superhero, but so are her parents! What an amazing family!

  2. 2
    Millie Rodriguez on June 19, 2019

    You are amazing!

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