The KOALA Study is an opportunity for patients and families to advance KAND research, and get us closer to treatment, by participating in clinical assessments at Columbia University Irving Medical Center in New York City. The KOALA Study (KIF1A Outcome measures, Assessments, Longitudinal And endpoints Study) is led by Principal Investigator, Dr. Wendy Chung, and a team of specialists who will perform standardized assessments with KAND patients to understand how KAND symptoms develop and change over time. Learn more about the KOALA Study here.

If you need financial assistance to travel to participate in the KOALA Study, please complete the KOALA Study Travel Reimbursement Request Form below. Travel reimbursement is made possible by Ovid Therapeutics.

Important Notes

  • The program provides assistance for KIF1A patients and up to two caregivers traveling to New York City to participate in the KOALA Study. You may choose to bring additional guests (e.g. siblings).
  • The program provides assistance for up to four nights of stay in a hotel for your visit to New York City. You may choose to stay longer or shorter.
  • Before submitting this form, you must schedule your appointment for the KOALA Study with Columbia University by emailing kif1a_study@cumc.columbia.edu. The Study Coordinator at Columbia University will confirm your appointment dates via an email sent to you, which you will forward to KIF1A.ORG at koala@kif1a.org.
  • Reimbursements will not be paid until receipts showing proof of purchase are sent to KIF1A.ORG via email at koala@kif1a.org. There will be two points of time for reimbursements:
    • Purchases made in advance of the KOALA Study visit (e.g. airfare, train tickets, travel insurance) will be reimbursed within one week of submitting receipts to KIF1A.ORG
    • Purchases made during the KOALA Study visit (e.g. hotel stay, meals, etc.) will be reimbursed within one week of submitting receipts to KIF1A.ORG
    • Receipts must be submitted no later than two weeks after the KOALA Study visit
  • Reimbursements and meal stipend payments will be made via Zelle or physical check. KIF1A.ORG will contact you to gather information for the disbursement
  • If you have unique circumstances (e.g. mileage reimbursement, passport expenses, need payment in advance, etc.), please email KIF1A.ORG at koala@kif1a.org to see how we can support you

The KOALA Study Travel Reimbursement program provides reimbursements and support for:

  1. Transportation to/from New York City: KIF1A.ORG will reimburse transportation expenses (e.g. airfare, car rental, train tickets, etc.) if receipts showing proof of purchase are provided. Purchase travel insurance for airfare, if possible. KIF1A.ORG will reimburse travel insurance expenses.
  2. Hotel Stay for up to 4 Nights: KIF1A.ORG will reimburse the cost to book one hotel room for up to four nights if receipts showing proof of purchase are provided. The preferred hotel is the Edge Hotel at 514 W. 168th St., New York, NY 10032 (https://www.edgehotelnyc.com/), which is the closest hotel to Columbia University Irving Medical Center (a five-minute walk or stroll). We have access to the Columbia preferred rate at The Edge and will provide booking details upon receipt of your Travel Reimbursement Request Form. If you choose to stay at a different hotel, KIF1A.ORG will reimburse you at the same rate as the Edge Hotel for up to four nights. The Edge rooms do not have mini fridges, but they will provide one upon request.
  3. Meal Expenses for up to 4 Days: Meal expenses up to $50 per day, per person (for KIF1A patients and up to 2 caregivers) will be reimbursed by KIF1A.ORG.
  4. Car Service to/from the Airport: If you are flying in to New York City, KIF1A.ORG will arrange a car service for transportation from the airport to the hotel upon arrival and from the hotel to the airport for departure.

If you have any questions about the KOALA Study Travel Reimbursement program, please send an email to koala@kif1a.org

KOALA Study Travel Reimbursement Request Form

"*" indicates required fields

Name of KOALA Study participant*
If you have more than one KIF1A patient (e.g. two affected siblings) attending a KOALA Study appointment, type both first names in the First Name field (e.g. Jack and Jill).
Your name*
Your full residential address*
You must have your KOALA Study appointment confirmed before submitting this Travel Reimbursement Request Form. Forward the appointment confirmation email from Columbia University to koala@kif1a.org to show your enrollment in the study.
MM slash DD slash YYYY
MM slash DD slash YYYY
MM slash DD slash YYYY
Please include first and last name of those accompanying the participant, including additional children, family members, etc.
Cost of transportation to New York City for patient(s) and up to 2 caregivers includes airfare, train, rental car, etc. Please purchase travel insurance, when possible. KIF1A.ORG will reimburse travel insurance expenses. ***After you submit this form, email receipt(s) to koala@kif1a.org to document the reported cost.*** Please provide in US Dollars.
If yes, KIF1A.ORG will provide booking instructions via email after receipt of this form.
The preferred hotel for KOALA Study visits is the Edge Hotel at 514 W. 168th St. New York, NY 10032. KIF1A.ORG will reimburse ONE (1) room up to FOUR (4) nights at the Edge Hotel. If you would like to stay at a different hotel, we will reimburse at the same rate as The Edge Hotel for up to 4 nights. Hotel reimbursements will not be made until after your hotel stay. ***After your KOALA Study visit, email your receipt to koala@kif1a.org to document the reported cost.*** Please provide in US Dollars.
Up to two caregivers and the study participant(s) will be permitted to benefit from the KOALA Study Travel Reimbursement program. The program provides reimbursement for 1) transportation to and from New York City (e.g. plane, car, train, etc.), 2) a hotel stay for 1 room up to 4 nights (not including incidentals, and 3) up to $50 per day, per person, up to four days for meals. If requested, KIF1A.ORG will arrange a car service for transportation from the airport to the hotel upon arrival and transportation from the hotel to the airport for departure. Any costs for additional travelers (i.e. other than the patient and up to 2 caregivers) or travel expenses beyond those described above will not be supported through the program. You agree to spend the funds on KOALA Study travel-related expenses (e.g. airfare, lodging, meals, etc.) ONLY and will not use this program to pay for luxurious travel expenses, such as first class plane tickets.*
In the event travel arrangements must be cancelled or modified, the participant's responsible party must notify KIF1A.ORG as soon as possible by emailing koala@kif1a.org. Any unspent reimbursements must be returned to KIF1A.ORG.*
Funding through the KOALA Study Travel Reimbursement program is not guaranteed by filling out this form. An email confirming approval from KIF1A.ORG will be provided to the applicant if the request has been approved.*
All submitted information is kept confidential. KIF1A.ORG reserves the right to amend the program guidelines, eligibility, and procedures at its sole and absolute discretion. By checking this box, you acknowledge and agree to the terms and conditions of the KOALA Study Travel Reimbursement program. KIF1A.ORG is not responsible for any cost not approved for the KOALA Study Travel Reimbursement program. All information provided in this form is true and accurate to the best of your knowledge. By submitting this request form, you understand some additional information may be requested by KIF1A.ORG to determine eligibility, and you consent to be contacted by someone from KIF1A.ORG.*