KIF1A Facebook Support Group

Connecting Families

 KIF1A.ORG is a nonprofit organization working to eliminate the challenges of families affected by KIF1A Associated Neurological Disorder. Our primary objectives are:

  • To connect families affected by KIF1A Associated Neurological Disorder
  • To immediately fund and accelerate research leading to treatment


Mutations in KIF1A cause a progressive neurological syndrome. The condition is referred to as KIF1A Associated Neurological Disorder, or KAND.

Doctors and families have to work together quickly in order to help children with mutations in KIF1A.

We connect families committed to discovering treatment for children living with KIF1A Associated Neurological Disorder. To find other families affected by KIF1A fill out the form below and somebody will reply within 24 hours.