Feb 1 - 28
Saturday, February 1, 2025 - Friday, February 28, 2025 Participate from anywhere in the world!

Will You Join Us for Miles That Matter for KIF1A?

This February, we’re challenging ourselves—and each other—to complete 28 miles (or more!) by February 28, 2025, in honor of Rare Disease Day!

KIF1A Associated Neurological Disorder (KAND) can prevent some of our children from ever being able to move, and those who can face the possibility of losing that ability over time. It’s one of the many devastating symptoms of KAND, which is why…

WE DON’T TAKE A SINGLE STEP FOR GRANTED.

As parents, caregivers, and supporters, it’s vital that we stay strong. This Rare Disease Month, we’re on a mission to honor our KAND warriors by raising awareness and supporting critical research to find effective treatments and, one day, a cure.

You can complete your miles however you choose—walking, running, cycling, or any way that feels right for you. Every mile matters, and it’s all about moving forward. We hope to inspire everyone to join us in this journey!

When you register you can join an existing team, or create a new team.

Exciting Bonus: Complete 28 miles or more, submit your results, and you’ll be entered to win one of three $100 Amazon eGift Cards!

Can’t join the challenge but still want to make an impact? Donations and support for our mission are always greatly appreciated.

Let’s move forward—one step, one mile, one goal at a time!

You can also purchase Miles that Matter shirts and sweaters to support our cause, and clock those miles in style! Check out some of the styles below.

You can also encourage others to join our event by sharing this website or printing this 5×7 inch postcard using them to invite your neighbors, friends, or coworkers.

We may be rare, but we are certainly not alone! As of Jan 21, we have 450+ registrants!

Thank you to everyone who has registered and encouraged others to participate!