💚 April 28, 2025: KIF1A Day
Every April 28th, we come together to honor our community on KIF1A Day—a day to celebrate our incredible patients and raise urgent awareness for KIF1A-Associated Neurological Disorder (KAND) and the critical need for treatments and a cure.
✈️ Please join us this KIF1A Day, as we raise money to help KAND families get to Boston!
This summer, families affected by KAND will travel from around the world to attend the KIF1A.ORG Family & Scientific Conference in Boston. For many, the cost of travel is a major obstacle—and that’s where you can step in.

Your donation will help cover:
- Airfare
- Lodging
- Travel expenses
These funds allow families to take part in essential research, connect with medical experts, and find strength in a community that understands their journey.
💚 Give today to help our superheroes and their families get to Boston.
Every dollar gets them one step closer to connection, answers, and hope.
Meet our Superheroes!

