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Jul 9 - 10
Friday, July 9, 2021 - Saturday, July 10, 2021 Virtual

Let’s bring our growing KAND community together again this year! Registration for our virtual 2021 KAND Family and Scientific Engagement Conference is now open. Click the button below to register for the event. Can’t wait to “see” you there! Please note that all times on the agenda are in Eastern Daylight Time (EDT), New York City, UTC-04:00).

2021 KAND Family & Scientific Engagement Conference Agenda Overview

Learn about the latest in KIF1A.ORG’s research and therapeutic development efforts, and exchange insights with families, scientists and clinicians. This virtual event will feature on-demand videos and all live sessions will be recorded for later viewing.

Agenda Overview (all times are in Eastern Daylight Time, New York City, UTC-04:00)

FRIDAY, JULY 9


12:00 – 12:15 p.m. Welcome & Why We’re Here
12:15 – 12:45 p.m. Let’s Connect: Ice Breaker
12:45 – 1:00 p.m. We Remember
1:00 – 2:00 p.m. What We’ve Learned from the KAND Natural History Study
2:00 – 2:15 p.m. Break
2:15 – 3:00 p.m. KIF1A.ORG’s Therapeutic Development Strategy
3:00 – 4:15 p.m. Family Track (Patient Perspectives Activity); Scientist & Clinician Track (Short Talks)
4:15 – 4:45 p.m. What Matters Most to KAND Families?
4:45 – 5:00 p.m. Day 1 Closing

SATURDAY, JULY 10


1:00 – 1:05 p.m. Welcome to Day Two
1:05 – 1:15 p.m. This Is KIF1A.ORG
1:15 – 1:45 p.m. Care Guidelines: What We Have & What We Need
1:45 – 3:00 p.m. KAND Symptoms Q&A
3:00 – 3:15 p.m. Break
3:15 – 4:15 p.m. KAND Therapeutic Development Q&A with Collaborators (Before the KAND Conference, view recorded presentations from our therapeutic development collaborators. During this hour, our collaborators will take questions from the audience.)
4:15 – 4:45 p.m. Clinical Trial Readiness
4:45 – 5:00 p.m. Closing Remarks
4:00 – 5:30 p.m. Networking/Social Time