Are you studying or interested in studying KIF1A? KIF1A.ORG is dedicated to advancing research and efficiently communicating with KIF1A patients, caregivers, clinicians and researchers from around the world. The most effective path to treatment is urgency and collaboration. Our community relies on researchers and caregivers as partners. You play a critical role in our mission.

We value open access and innovation. Visit our Research Simplified page to see how KIF1A.ORG unites researchers and caregivers to close the circle between the scientific community and the patient community. Together we can accelerate discovery of treatment.

KIF1A.ORG is not interested in intellectual property, patents or profit. We’re a group of patients, advocates, caregivers, family members and scientists willing to do whatever it takes to give our kids with KAND a meaningful and happy quality of life.

If your research can impact our families, please connect with KIF1A.ORG.