Our mission for a mouse led to us to the dedicated and supportive team of scientists at The Jackson Laboratory. Thank you JAX, thank you families. Check out our youtube channel and see all the videos posted by families, friends and strangers.

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Every night we'll post short videos of people supporting our quest for a KIF1A mouse. Doesn't matter where you are or who you're with - pull out your phone and shoot a quick video telling the world that we need a mouse. Tweet it and tag us @KIF1A, post it on our Facebook page or email your mouse video to 

​​​​​​The first stage in discovering a cure for any genetic disease is understanding the biology of the gene and what effect a disease causing mutation has on a human being. To do that, we need a mouse. Our first mission: Develop a mouse model for scientists, researchers and doctors to work with.

JAX Laboratory is where our hero mouse will be born. This superhero mouse will pioneer a treatment for KIF1A Kids, we thank him. Join our campaign to tell the world #WeNeedAMouse. Developing our mouse model is an expensive task. We need to fund the work. With your support we will get our KIF1A ​mouse.

Our friends at Jackson Lab are some of the most supportive people in the world. These scientists care about our families and our KIF1A children. They also tell inspiring stories of how their work saves the lives of other kids with rare diseases. Why do we really need a mouse? Well, lets let the relentless scientists at JAX tell you.​​

Why We Need A Mouse