KIF1A.ORG is a 501(c)(3) nonprofit organization. All donations are tax deductible. 

Dr. Wendy Chung addresses the urgent need for accelerated KIF1A ​research

​​​​KIF1A Research

Our mission is to save the life of every child affected by KIF1A. The only way to discover treatment is to immediately accelerate research by convening the world's leading scientists in childhood genetic and neurodegenerative disorders. This collaboration will lead to treatment and increase the quality of life of those affected by KIF1A. It is vital for us to drive science, fund immediate research and find a way to stop the progressive nature of this disease.